The Alpha-1 Foundation's and University of Florida's Alpha-1 Coded Testing (ACT) Study

Part of paid clinical trials in Gainesville, Florida.

Sponsor
University of Florida
Study ID
NCT00500123
Status
Recruiting
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Conditions

  • Alpha-1 Antitrypsin Deficiency

Eligibility Criteria

Sex
ALL
Age
N/A - N/A
Healthy Volunteers
Accepted

Interventions

  • Alpha-1 Antitrypsin Genotype — PROCEDURE
    Home fingerstick testing for alpha-1 antitrypsin genotype

Study Details

The Alpha-1 Coded Testing (ACT) Study was established to study genetic testing and outcomes of individuals at risk for alpha-1 antitrypsin deficiency.

Key Dates

Start date
Jan 31, 2001
Status verified
Nov 2025
Primary completion
Jan 31, 2050
Completion
Jan 31, 2050

Study Design

Enrollment
50,000 participants (estimated)

Primary Outcome Measure

Structured questionnaire responses on the risks and benefits of testing. [ Time Frame: Before and after alpha-1 antitrypsin testing ]

Central Contacts

Locations (1)

FacilityCityStateZIPSite coordinators
University of FloridaGainesvilleFlorida32610
Michelle Owens, RN, BSN
[email protected]
352-273-6339
Allison Faunce, B.A.
[email protected]
352-273-8666
Karina Serban, M.D. (PRINCIPAL_INVESTIGATOR)

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By research site
University of Florida· Gainesville, FL

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