Biliary Atresia Study in Infants and Children

Part of paid clinical trials in Los Angeles, California.

Sponsor
Arbor Research Collaborative for Health
Study ID
NCT00345553
Status
Recruiting
Apply to this trial

Conditions

  • Biliary Atresia

Eligibility Criteria

Sex
ALL
Age
6 Months - 20 Years
Healthy Volunteers
Not accepted

Study Details

Little is known about the factors that cause biliary atresia nor the factors that influence disease progression. The purpose of this study is to collect the pertinent clinical information, genetic material and body fluid samples to enable investigators to address the following aims: To identify the gene or genes implicated in the etiology of BA; To characterize the natural history of the older, non-transplanted child with BA.

Key Dates

Start date
May 16, 2006
Status verified
Jun 2026
Primary completion
May 31, 2029
Completion
May 31, 2029

Study Design

Enrollment
1,265 participants (estimated)

Arms

  • Arm: 1
    Biliary atresia subjects who have their native liver

Primary Outcome Measure

To identify the gene or genes implicated in the etiology of BA [ Time Frame: Specimens for this aim are collected once during study, usually at baseline. ]

Central Contacts

Locations (15)

FacilityCityStateZIPSite coordinators
Children's Hospital of Los AngelesLos AngelesCalifornia90027
Sirikorn Boonsawat
[email protected]
323-361-2181
Christopher Gayer, MD (SUB_INVESTIGATOR)
Rohit Kohli, MD (PRINCIPAL_INVESTIGATOR)
University of California at San FranciscoSan FranciscoCalifornia94143-
Children's Hospital ColoradoAuroraColorado80045
Kelly Gilmartin
[email protected]
720-777-2961
Michelle Landis
[email protected]
720-777-8884
Ronald J Sokol, MD (PRINCIPAL_INVESTIGATOR)
Michael Narkewicz, MD (SUB_INVESTIGATOR)
Shikha Sundaram, MD (SUB_INVESTIGATOR)
Amy Feldman, MD (SUB_INVESTIGATOR)
Dania Brigham, MD (SUB_INVESTIGATOR)
Children's Healthcare of Atlanta - Emory UniversityAtlantaGeorgia30322
Katelynn Harris
[email protected]
404-785-0421
Jordyn Turner
[email protected]
404-785-3690
Nitika Gupta, MD (PRINCIPAL_INVESTIGATOR)
Saul Karpen, MD,PhD (SUB_INVESTIGATOR)
Rene Romero, MD (SUB_INVESTIGATOR)
Miriam Vos, MD (SUB_INVESTIGATOR)
Ann & Robert H. Lurie Children's Hospital of ChicagoChicagoIllinois60614
Jacqueline Alexander
[email protected]
312-227-3523
Angela Anthony
[email protected]
312-227-4559
Estella Alonso, MD (PRINCIPAL_INVESTIGATOR)
Lee Bass, MD (SUB_INVESTIGATOR)
Riley Children's HospitalIndianapolisIndiana46202-
Johns Hopkins School of MedicineBaltimoreMaryland21287-
Washington University School of MedicineSt LouisMissouri63110-
Mount Sinai Medical CenterNew YorkNew York10029-
Children's Hospital Medical CenterCincinnatiOhio45229
Jennifer Hawkins, MS
[email protected]
513-636-7818
Erin Chapman, BAS
[email protected]
513-803-7482
Alexander Miethke, MD (PRINCIPAL_INVESTIGATOR)
Joseph Palermo, MD (SUB_INVESTIGATOR)
Children's Hospital of PhiladelphiaPhiladelphiaPennsylvania19104
Caitlin Griffiths, MS
[email protected]
267-577-9888
Jordan Moreno
[email protected]
267-425-1614
Kathleen Loomes, MD (PRINCIPAL_INVESTIGATOR)
Elizabeth Rand, MD (SUB_INVESTIGATOR)
David Piccoli, MD (SUB_INVESTIGATOR)
UPMC Children's Hospital of PittsburghPittsburghPennsylvania15224-
Texas Children's Hospital (Baylor College of Medicine)HoustonTexas77030
Laurel Cavallo
[email protected]
832-822-1053
Cynthia Tsai
[email protected]
832-822-3634
Paula Hertel, MD (PRINCIPAL_INVESTIGATOR)
Benjamin Shneider, MD (SUB_INVESTIGATOR)
University of UtahSalt Lake CityUtah84113
Ann Rutherford
[email protected]
801-585-9495
Natalie Fillerup
[email protected]
801-587-5670
Stephen Guthery, MD (SUB_INVESTIGATOR)
Kyle Jensen, MD (PRINCIPAL_INVESTIGATOR)
Linda Book, MD (SUB_INVESTIGATOR)
Seattle Children's HospitalSeattleWashington98105
Melissa Young
[email protected]
206-987-1037
Teresa Chen
[email protected]
206-987-6649
Pamela Vaentino, MD (PRINCIPAL_INVESTIGATOR)
Evelyn Hsu, MD (SUB_INVESTIGATOR)
Niviann Blondet, MD (SUB_INVESTIGATOR)

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