Diamond Blackfan Anemia Registry (DBAR)

Part of paid clinical trials in New Hyde Park, New York.

Sponsor
Northwell Health
Study ID
NCT00106015
Status
Recruiting
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Conditions

Eligibility Criteria

Sex
ALL
Age
N/A - N/A
Healthy Volunteers
Not accepted

Study Details

The purpose of this study is to maintain a comprehensive registry of patients with the rare inherited bone marrow failure syndrome Diamond Blackfan anemia (DBA).

Key Dates

Start date
Sep 30, 2004
Status verified
Apr 2026
Primary completion
Apr 30, 2030
Completion
Apr 30, 2030

Study Design

Enrollment
900 participants (estimated)

Primary Outcome Measure

Understanding the epidemiology and biology of Diamond Blackfan anemia [ Time Frame: yearly ]

Central Contacts

Locations (1)

FacilityCityStateZIPSite coordinators
Cohen Children's Medical Center of NYNew Hyde ParkNew York11040
Eva Atsidaftos, MA
[email protected]
518-562-1504
Jeffey M Lipton, MD, PhD (PRINCIPAL_INVESTIGATOR)
Adrianna Vlachos, MD (SUB_INVESTIGATOR)

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By research site
Cohen Children's Medical Center of NY· New Hyde Park, NY

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