Natural History of Sickle Cell Disease

Conditions

• Pain Crisis

Eligibility Criteria

Sex

ALL

Age

2 Years - 90 Years

Healthy Volunteers

Not accepted

Study Details

This study is not a treatment protocol and no experimental treatments are involved. Study participants may be seen as needed for clinical, translational and basic research studies, or as medically indicated. Subjects will receive their general medical care outside the NIH and will be seen at our clinic or at CNHS with varying frequency. Subjects may be seen for multiple visits. Subjects may be asked to return for additional testing as needed. Clinical care for patients with sickle cell disease will be provided as appropriate through the Sickle Cell Clinic and the inpatient clinical center.

Key Dates

Start date

Apr 29, 2004

Status verified

Jun 2026

Study Design

Enrollment

3,500 participants (estimated)

Arms

• Arm: Patients
  Individuals with known or suspected sickle cell disease

Primary Outcome Measure

To gather, through clinical experience, information regarding the natural history, co-morbid conditions and outcomes, and complications relating to sickle cell disease and other hemolytic disorders in minority/ethnic patients [ Time Frame: ongoing ]

Central Contacts

• Nancy A Asomaning
  (301) 605-0398
  [email protected]

Locations (3)

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